Monday, February 14, 2011

Day 100 Approaching

So today is day 95 post transplant. Day 100 is a pretty big milestone the doctors say. Once I pass day 100, I am out of the woods as far as being effected by acute (possibly fatal) Graft vs. Host disease. Now over the next months, I need to look out for chronic Graft vs. Host. Typically chronic is not fatal and treatable with meds. Could effect my skin, my eyes, intestines etc.

According to the doctors, Right now I am doing great. I feel great aside from the occasional lack of energy. I am anxious to get back to work! The days are getting pretty long and boring. Here is my typical day:

  • Get up at 6:30AM to help get the kids ready.
  • Bring Nolan to his grandparents at 7:00AM to get onto the bus.
  • Return home and have breakfast. Typically a raspberry toaster strudel.
  • Take pills.
  • Watch Judge Judy, Judge Shapiro, and Judge Joe Brown.
  • Take pills.
  • Watch various cooking shows while in and out of semi-conscious state on the couch.
  • Awake with hunger pains.
  • Make a shake from vanilla ice cream, peanut butter cups, protein powder and sugar and have that for lunch.
  • Cover up on couch with my heating blanket because I am now freezing from the ice cream shake.
  • Drift off to sleep again with the heating blanket keeping me nice and cozy.
  • Awake and realize Crystal will be home soon.
  • Unload and load dishwasher.
  • Make bed.
  • Fold laundry – hope it is only towels in the dryer to fold. Much easier than Nolan and Paige’s in-side-out laundry that comes out of the dryer.
  • Fold and organize blankets on couch to make it appear they were not used all day.
  • Go pickup Nolan from Grandparents. 4:00PM 
So, as you can see, I have a pretty action packed day. I have a pretty eventful week this week though. Today, I need to submit some medical reimbursement paperwork, on Wednesday; I will be bringing old clothes to the Goodwill drop off at the dump. (Dump closed Mon and Tues). Thursday, I will need to let a technician into the house to work on our treadmill.

I will say it again, I am anxious to return to work in some capacity. The doctors are saying that by April, I should be able to return in some fashion. I am glad February is a short month!!





Mollie said...

Good to hear from ya Chad. I never figured you for a Judge Judy sort of guy...I mean, you guys have cable right? :) So glad to hear everything is going well! AND...we're having the right kind of weather to hibernate inside with that heated blanket!

Forward Foot Strides said...

Glad to hear of your milestone! That shake sounds tasty.

Sonya said...

glad to hear from you. i love your little schedule. i've been wondering what your typical day is like. can't help but wonder if you have a new appreciation for the laundry fairy that usually does all the folding. Hope the warm temps tomorrow give you some extra energy... hoping it does the same for me:):) Day 100 fast approaching... Congrats!

Anonymous said...

Hey! Great to hear you’re still making terrific progress! It's ironic how when we're working we'd love to be able to do nothing but doze in and out of consciousness with a heating blanket BUT when we have that situation, all we really want to do is go to work. Go figure!

Keep the updates coming! Tell Crystal I said HI.

Michelle D.

JJM said...
This comment has been removed by the author.
JJM said...

Tell me something!? After awhile doesn't Sandra Lee's food look good? Believe me it doesn't taste all that great. After a few weeks of her I started thinking of Tablescapes myself and painting the kitchen in the color of my meal. And do you think Rachel Ray could make something without a f'in onion for once?

Dissapointed you are not a VIEW fan. Those chicks know how to toss an opinion around.

I thought I was the only one that did towels only.