When I was diagnosed in August of 2010 with Leukemia, Crystal and I were shocked to say the least. Our whole world was slapped in the face and kicked in the ass. It was an extremely difficult time.
I immediately went on high dose chemo and was in the hospital for over a month. At the end of the month, we were told the leukemia was wiped out but could come back. I was released and after 1 week, I had double vision and a rash. The leukemia was back and now attacking my central nervous system - ya know, my brain and stuff...
Another round of high dose chemo with several rounds injected directly into my spine so the drugs could make it to my brain. OUCH. Also, brain radiation. After almost another month in the hospital, I was sent home being told the leukemia was gone. That was October 2010.
Since that time, I had a third round of high dose chemo, full body radiation (I should just go help out at the nuclear plant in Japan, the damage is already done to my body) a bone marrow transplant and gallbladder surgery. I have not been checked to see if the leukemia is still in remission. They closely monitor my blood chemistry. If something is off that may be an indication of leukemic activity and they will do further testing.
It has been six months since anyone has told me I have leukemia. If you read about my form of leukemia, AML M5 with CNS involvement, on the Internet, I should not be in nearly as good of shape as I am now. I did not find one successful outcome with my type of leukemia. Not one. Looks like I may be the first successful outcome. Maybe they will feature me in the New England Journal of Medicine. :) I do know that I still get extremely tired each day. A mile on the treadmill feels like a 10K. The doctors say that my endurance will improve but will not be what it was pre-leukemia. As far as I know though, my new immune system is working like a champ. It is seeing those leukemic cells in my body and is destroying them. I do feel better everyday. My taste buds have returned and I am gaining some needed weight back. I am hoping to return to work soon. I have not worked since August. That being said, I still lay in bed at night and wonder though, is the worst behind us?? I certainly hope so!