Today, we had the first of many follow up appointments in Boston. These are weekly appointments at Dana Farber to check on my progress. Today's appointment was at 9:00AM. To make things easier, the kids spent the night at Reggie and Vicki's. We were out of the house by 6:15AM. Crystal had packed me snacks because I cannot eat food from restaurants for the next few months. Food tastes terrible right now. The radiation pretty much wiped out my taste buds. I am struggling to get 1000 calories a day into my system. As a result, I only weigh about 160 lbs.
We hit a bit of traffic, but ended up getting there around 8:40. They drew a bunch of blood and then we waited to speak with the nurse practitioner. She went over my blood counts and said that things looked great. I am right where I should be on the progress meter. I am at day 28. Meaning I am 28 days past transplant. We also found out that it is OK to have adult visitors at the house as long as they are not sick and have not been around anyone sick.
Overall, I am feeling OK. It is great to be home. I actually drove today and picked up the kids. It was nice to feel "normal" and be part of society again. The nurse told us today my taste buds may take several weeks/months to redevelop. Until that happens, I need to just keep trying different foods until something clicks.
Also Crystal and I wanted to also thank everyone who was involved with and who generously donated towards the benefit being held at the Gold Room tonight.